Friday, June 30, 2017

Day 379 - Not much change

     Here we are about halfway through summer break and so far there isn't much to update.  Cristy and Evan visited with the ID doctor on Wednesday for a once over.  While checking his body for pockets of infection Evan indicated that he felt discomfort in his hip, however the Dr. felt this was likely muscle related and not bacterial.  Our primary ID doctor has decided to accept a position out of state.  This appointment gave us an opportunity to meet our newly assigned ID doctor.  We wish Dr. H well and thank her for her care and attention to Evan.

Visiting Lego Land

      On July 14th Evan has his next clinic appointment.  This will be a difficult one because it's steroids, Vincristine and a spinal tap.  We'll be watching how Evan's body responds to the steroids very closely.  Historically this has been when he's had the most problems with infection.  We also have an MRI scan scheduled for the 18th.  This is a precautionary step to catch any potential infections before they become much larger problems.

So glad to see mommy is back.

     July 4th is just around the corner.  The plans for now, weather permitting, is to shoot fireworks here at the house on Sunday and attend the fireworks show in downtown Kennesaw on July 3rd.  The kids love watching fireworks so I made sure to buy enough to last us for an hour or so.  The start date for school is fast approaching on July 31st.  I miss the longer summer breaks, but I guess it's nice that they get more time off during the year.

Getting around a little better.

     Last weekend Cristy joined her brother and aunt to attend her mom's memorial service.  With all that was going on with Evan's health Cristy hurried back home when she passed in October.  Her mom will be missed and we hope she rests peacefully.  When the boys ask about her we'll try to remind them of how much she cared for them and the time they got to spend together.

Waiting on the doctor.

   

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