Today marks the 39th earth year my wife has been in existence. I'd like to wish her a very happy birthday. This weekend she is leaving town to visit a friend in what will be her first vacation time since Evan was diagnosed. This is well deserved for her as she helps keep this family together and moving in the right direction. I don't know what I'd do without her.
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| Meeting Kylo. Pic 1 of 3. |
Earlier today Evan had a lab appointment for a Voriconazole check. His therapeutic level for this drug fluctuates wildly from month to month, likely due to a conflict with some of his chemotherapy drugs. We also strongly believe that the Voriconazole and Methotrexate are contributing to redness in Evan's face and arms. From talking with ID they have no plans to pull the Vori during his cancer treatment. There is still signs of fungal infections in Evan's liver and spleen during the last MRI, but these have been here throughout.
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| Pic 2 of 3. |
Next Friday Evan is meeting with the Oncology team. They'll draw blood to check his counts and administer Pentamidine and IVIG. During the last count check Evan's white blood cells and ANC were a little higher than that the doctors wanted so I'm anxious to see how his body is responding to the maintenance treatment of Methotrexate and Mercaptopurine. The good news is that other than red skin he's not showing any signs of the other side effects.
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| Pic 3 of 3. |
Cristy took the boys to the new splash pad at Swift-Cantrell Park by us this afternoon. The boys didn't sit still long enough to catch decent pics, but by all accounts they enjoyed themselves. Something tells me that will be a staple of our summer. With Evan not scheduled for any other appointments for a while I would expect the blog the be silent for a week or so.
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| One of the few times the boys were close enough for a pic together. |
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