Day 254 - A Night at the Circus

     This evening Cristy and I had a night out with the boys at Ringling Bros. and Barnum and Bailey's farewell tour in Gwinnett.  This was all courtesy of Cure, a non-profit organization who helps fund cancer research.  In addition they do other charitable work focused on helping the families with events, meals in the hospital or fund raisers that help bring awareness to the cause.  Another fantastic charity I would recommend donating to if you're looking for ways to help.

Getting ready for the show.

     I'd be remiss not to thank the Gwinnett Infinite Energy Center staff.  They also went above and beyond for all the families to help make them feel welcome and make sure we had everything we needed.

Nolan's first trip the the circus.

     On Friday Evan had PT and a blood draw to determine if his blood counts were healthy enough for his next dosage of chemotherapy on Monday.  Everything looked good and we're all set to continue Interim Maintenance.  Each day you can see Evan's movements looking more and more natural.  I don't think he'll be running 5Ks anytime soon, but he looks better than he's looked in months.

Boys night!

     I'm very excited to report Evan starts school on Monday.  I want to give a huge thank you to Evan's kindergarten teacher Mrs. Young.  She came in on her day off on Thursday to do a mini-orientation with Cristy and Evan so that it's not completely new to him next week.  Evan is over-the-moon ecstatic about getting to meet his classmates.  He even free-styled a song for me and Cristy about being nervous but it being OK.  I'm also told one of  his classmates is taking it upon himself to help Evan get settled in.

A little bit of musical chairs throughout the night.

     When Evan goes for his appointment next week Cristy is going to inquire about timing for his port install.  There has been on-going discussions among the medical team, however Cristy and I have never gotten a solid answer.  One of his NPs has suggested doing the install during his next spinal tap.  We'd be really happy if this becomes a reality.  It would allow a little more normalcy for Evan and give Cristy and I one less thing to worry about when it comes to introducing infections into his bloodstream.

Getting into the souvenirs.

     Not much else to report at this time.  Gonna close out with a slew of pictures that I hope put a smile on your face.  Nothing made me happier than forgetting about our challenges for an evening as a family and seeing smiles on everyone's face.