Thursday, August 23, 2018

Day 800 - Happy 7th birthday Evan

       Today we reach another milestone in our overall journey as we celebrate Evan's 7th birthday (his 3rd since being diagnosed).  As with any family facing cancer you're never sure when the next birthday could be the last and as always we try to cherish these milestones as much as possible.  Due to early challenges in our treatment Evan faced significant weight loss, immobility and assorted side effects from the medication (nausea, vomiting, gastrointestinal).  Even last year he was still on voriconazole on his 6th birthday and had an adverse reaction to sunlight and red circles around his eyes.

8/24/2016

     Evan has grown so much over this time and I strongly believe this experience has matured him much faster than if we had not been diagnosed.  Cristy and I wonder all the time what his life and personality would have been like if not for this struggle.  He is incredibly smart and amazes me daily with how quickly he picks up on things.  On the downside, I know he internalizes his feelings and comes off as moody sometimes.  I'm hoping this is just a phase.  Nevertheless, I am incredibly proud of him.  He powers through every treatment like a champ and rarely shows signs of fatigue.

Photo from this time last year

     As usual we're celebrating with Del Taco and Menchie's.  Tomorrow my family is coming up and we're going to spend the day at Dave and Buster's.  With all his favorites covered I hope he enjoys the weekend and understands how significant and special this is for all of us.  Evan doesn't need anything from a gift standpoint, but if you're looking to do something I would recommend donating to a charity we are fundraising for at the moment - The Rally Foundation. You can make a donation or purchase a "Rally for Evan" shirt!  Follow the link below to find out how you can help.

The Rally Foundation - Rally for Evan

     Next week Evan goes back to the doctor for a scan of his arm and hopefully he'll get his cast removed.  The way he's moving around without fear I feel pretty good that it's healed up.  I'm very thankful that is the only medical concern we have at the moment.  Enjoy your weekend young man.  You look like a monkey (he gets that from his Dad) and smell like one too (he gets that from his Mom).  To many more. 

8/24/2018 - Birthday breakfast

Minecraft swords from Uncle Luey


Donut eating contest at Camp Aurora event
Happy 5th birthday to my niece Lily!

Celebrating Lily's 5th birthday

School Spirit Night at Chuck E. Cheese!





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