Wednesday, October 24, 2018

Day 862 - Getting ready for cooler weather

     To date this blog represents the longest gap between updates.  It's been roughly two months since I've posted anything.  Needless to say I'll probably miss something.  As usual let's start with Evan's health updates.
     Evan's mobility is going really well.  He's still doing PT work every other week for his leg and continues to work towards more strength in his right arm since breaking it.  During his last clinic visit his blood counts looked very good.

WBC - 1.89
HGB - 10.2
Platelets - 128
ANC - 1.06

     All of these numbers are exactly where the doctors want to see them, suppressed, but still able to function.  With flu season coming I anticipate he'll get another virus this year.  Hopefully his body will be able to fight it off much like last season.  The monthly IVIG helps his immune system tremendously.  Cristy and I have been fighting with the insurance company over the last few months because they consider this treatment experimental.  I think we're finally past that hurdle and looking forward to stress free months ahead.
     Over the last 60 days we've wrapped up fundraising for Rally, taken part in multiple outings compliments of Camp Sunshine and Camp Aurora and Cristy attended Cure's Tribute to Quiet Heroes.  I'll try to update the blog with photos from Camp Sunshine Family Camp Weekend.  All of these charities have helped our family tremendously during treatment and I want to say thank you to them.  Cristy is beginning her fundraising for St. Jude's now as she will be participating in a 10K in Memphis on Dec 1st.  If you'd like to donate please see below:


     Upcoming we don't have much going on.  Typical monthly chemo and the holidays for the most part.  Heading to my parent's house this weekend for their 2nd annual Halloween party.  Should be fun and I know the kids love spending time (and sleeping over) at Grandma and Grandpa's house.  I'll try to be more timely in my updates going forward, but truthfully the lack of posts simply means that Evan is progressing as expected.



Getting dolled up for Tribute to Quiet Heroes event

Last day of Fall Break with the kids

Aladdin at the Fox - compliments of Camp Sunshine






Late night at the Fox aftermath - couldn't even brush teeth

Waiting on Grandma to celebrate her birthday


Favorite activity, besides video games

Following the removal of his cast

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