Sunday, October 29, 2017

Day 500 - Preparing for Halloween

     I have no excuses.  It's been far too long since our last update so get ready for picture overload on today's entry.  Let's get the health updates out of the way.  I'm pleased to report that other than a few sniffles Evan is holding steady.  I can't make the same statement for Cristy and Nolan.  Cristy has been battling a pretty tough cold for about 10 days now.  During this bout she's lost her voice a couple of times and is still coughing frequently.  Hoping that we can get this episode behind us and get her back to 100%.  Nolan has also been battling a stomach bug, but based on his latest trips to the bathroom I'm hopeful he has seen the last of it.

My hats fit him because of the head of hair.

     This coming Wednesday Evan has an appointment at the clinic for his monthly check-up.  It will be his typical treatment of IVIG and Pentamidine.  Two weeks ago we concluded our aquatic physical therapy and Evan is back to his normal visits at the CHoA satellite site by our house.  His regular therapist commented on how good he looked and said she would need to revise his PT goals to make sure he's continuing to push himself.

Checking out the masks at the store.

Tacky tourist day at school - part of red ribbon week.

     Recently we met with Evan's 1st grade teacher for an update on how he's progressing academically and socially.  We were pleased to hear that he's listening well and not too disruptive (which was my first priority), and that he's keeping pace with the class scholastically.  She was able to provide us with some areas in math and reading to keep Evan challenged.  

Cape Day - morning photo

     Below you'll find pictures from various events: the Pruitt Halloween Party, Hayes Spirit Night (at Sparkles), Fall Festival (at Hayes), Atlanta United soccer match and a family day at Dave and Busters to name a few.

The first Atlanta United game for the boys.

Hayes Spirit Night

Family time at Dave and Busters

Enjoying the view pre-game

Face painting at Fall Festival

Group photo with some of our neighbors

The kids look bored, but the crowd got them excited.

     Cristy and I had been procrastinating, but finally ordered the outdoor play set for the boys.  The company we hired to perform the work was Swing Time Outdoors.  I couldn't be more pleased by their quality of work, but what really made them stand out was their dedication to getting it perfect for us.  The slide was a bit steep, but completely functional.  It would have been easy for them to pack up and call it a day, but instead they came back the next day with a new slide, built a custom deck for the slide to improve the pitch and did it all promptly and free of charge.  I'd highly recommend them for any outdoor play areas you might be considering.




     Halloween is right around the corner and the boys are already getting sugared up.  Despite the cooler temps this evening we attended a block party with some of our neighbors and got a chance to meet some new folks.  The kids are getting excited and have already been diving into candy for the past few days.  I'm not thrilled about all the sugar, but at least Halloween only comes once a year.  Evan is going as Harry Potter, Nolan is Hedwig (the owl), Cristy is Hermione and I'm Professor Snape.  Looking forward to another fun night with the family as we continue to create lasting memories.

Harry and Hedwig


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