Sunday, October 15, 2017

Day 486 - Genetic results

     Here we are two weeks into October and it still feels like early September.  The Weather Channel is calling for cooler weather starting next week and I'm definitely looking forward to it.  Walking around this weekend reminded me just how uncomfortable it can be in moderate heat.

Heading to Chalktoberfest

     On Monday Cristy received a call from the CHoA immunologist with Evan's genetic testing results.  He informed us that Evan's genes did potentially show a marker that would indicate a less potent immune system; however, he cautioned us that he wasn't willing to make a final diagnosis until Evan is six months removed from chemotherapy and additional tests are performed.  In the meantime, Evan will continue on with his monthly regimen of IVIG.

Speeding down the shark slide

     This past weekend Cristy and I took the boys to a couple of local festivals.  The first one was Taste of Acworth on Saturday afternoon.  It was good to try some of the local cuisine that we've been missing since moving up this way.  Hopefully Evan's health will continue to improve allowing Cristy and I to get out more to try these spots on our date nights.
     The other event this weekend took us to Chalktoberfest in downtown Marietta.  We did some art work, ate lunch at a great spot in the square that we hadn't tried and checked out some very talented artists' drawings.  It's amazing seeing what some people can do with just their imaginations and chalk.  I'm lucky if I can make a decent looking stick figure character.


     Later this week I'm taking a couple of days off of work to spend some more time with the boys.  Cobb County Schools are doing an early release every day this week.  Cristy and I are meeting with Evan's teacher on Tuesday to see how he's doing and discuss any areas of improvement.  

Nolan requested a purple lion

Roaring session afterwards

     Evan is really tight-lipped about school and I've always tried to give him space if he doesn't feel like talking about it, but this week a funny story came of it.  About a week ago we noticed Evan came home with a Chik-Fil-A giftcard in his school folder.   When asked about it, he claimed he didn't know why he got it.  Cristy chatted with his teacher Friday morning, and we found out Evan was named Hayes Mustang of the Month for September.  We were extremely happy to hear this, but would have loved to have heard it from him.  There is no question he gets his modesty from his mom.

Doing some arts and crafts before heading back home

     Children's Healthcare of Atlanta encourages everyone to don capes on Friday to help recognize all the little fighters out there.  This is not a cancer specific event, but rather a way to highlight our heroes of all shapes and sizes regardless of their ailment.  If you'd like to find out more please check out this link:  Cape Day - ATL.  Evan is showing us his superhero pose and I'll make sure to get pictures of him on Friday.  Also, see below for Evan and Nolan's picture from last year.





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