Saturday, August 12, 2017

Day 422 - Happy Birthday Nolan!

     Almost all good stories have an antagonist, protagonist and a supporting cast.  This helps provide depth to the characters and adds to the story overall.  This is an example of life imitating art.  While this blog is dedicated to Evan and his journey, we'd be remiss not to focus on his supporting cast from time to time.

Nolan during the Tot Trot last weekend.

     Yesterday we celebrated Nolan's 3rd birthday; we continued his celebration today with a family photo session and trip to Medieval Times.  There are plenty of photos below of Nolan that span the last couple of weeks.  As anyone who's been around him knows he rarely is without a smile and he adores his older brother.  We all love him very much and try extremely hard to make sure he doesn't get lost in the fray while we're focused on Evan's health.
     Evan's cold seems to be nearing an end.  He was able to attend school Thursday and Friday without incident.  He still has an infrequent cough, but his temperature has remained stable.  I'm beginning to get frustrated with the redness that we continue to see in his face, particularly around his eyes.  When we talk to the medical team on Monday I'm going to try like crazy to get them to put a stake in the ground for pulling some of his meds.  Keeping these treatments indefinitely, when the ID doctor is in favor of discontinuing them, just seems non-beneficial to me.

Playing with some Silly String this evening.

     I suspect on Monday there will be a blog entry showing Evan's blood counts.  Evan hasn't spoke of any discomfort in his leg or stomach today, but I'm sure the docs will give him a once over.  If follow-up appointments for scans are ordered I'll provide some details on those as well.  Closing out with some photos of Evan and Nolan, along with the link to our family photos taken this morning.  As usual my Pruitt eyes struck again ruining at least one of the pictures.



Getting ready to dig into some birthday cupcakes.


Time to eat.  Shirts off.


Dr. Nolan



Kisses for Momma



There's no silverware at MT, so Evan did his own improvisation.



Sneak attack from above!




Only had a hard copy, sorry for the poor quality.

Family photo session

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