Day 167 - Wait and see

     To my regular readers of the blog and those interested in Evan's status I apologize for my delayed response.  Part of the lack of response was waiting to get more updates from the doctors and part of it is life getting in the way.  Let's go back to Sunday morning.  I was with Evan Sunday when we met with the medical team.  The main hold up on us being discharged was trying to secure our IV based antibiotic for home administration.  It was a holiday weekend creating even more confusion on when/if the medication could be sent to our home in time.

Daddy is being mean and forcing him to wake-up.

     Cristy and Evan have done a great job with his physical therapy work.  It sounds funny, but he seems more willing now to do the exercises post-surgery than he was prior to our admittance.  His leg and surgical wound look great to a layman like me.  That said, he hasn't complained of any pain or discomfort and we have to continually remind him not to bear weight on his ankle/leg/foot.  Cristy is meeting with his physical therapist for some work this morning and then heading to the hospital for another post-op checkup from his surgeon.  Assuming the surgeon is happy with Evan's progress he'll determine if weight bearing exercises can resume or the best course of action for healing.

Welcome to my lair.

     The Oncology team has been deliberating for four or five days now on what they feel would be the best course of action for his cancer treatment.  They've decided to give him a 50% dose of Vincristine to bridge the gap until Delayed Intensification restarts.  Until the infection is pretty much cleared they are being extremely cautious with his blood counts.  Once his blood counts bottom out it takes about two weeks to recover.  During his last blood draw all of his numbers looked solid and the increased WBC count will speed up his recovery time.

Locked and loaded.

     With us not having much to do at the hospital because of his ankle Evan resorted to being mischievous.  During a previous stay at the hospital one of our favorite nurses gave Evan the bright idea of filling up empty syringes with water and squirting unsuspecting people.  Luckily Evan doesn't have a future in magic yet so visitors were able to recognize what he was doing pretty quickly.  Most played along and let him soak them. I kept my distance and tried to remain dry as much as possible.  Evan's disposition throughout this whole ordeal has been very inspiring.  He's held up much better than I think I would have if put in the same position.  This week we'll be busy with appointments, but I doubt there will be any significant updates.  Should that change I'll try to be more prompt with getting something posted here.
   

Surprise!