Day 92 - Surgery?

     Evan has developed a sore on his lip and a cyst on his wrist.  Cristy called the nurses to determine if this is something to worry about and out of caution they asked us to come in yesterday to take a peek.  Evan has developed nervous habits and has been picking his lips, however our primary doctor thinks the largest sore on his lip is related to the methotrexate levels in his body.
     The cyst showed up almost instantly.  We first noticed it Sunday evening after taking the boys out that afternoon.  To the touch it is hard, although it doesn't seem to be causing Evan any discomfort or pain.  Fortunately it doesn't appear to have grown since our initial discovery.  The doctor looked at it and referred us to surgery to have it removed or drained.  We're awaiting word back on the scheduling of that and what exactly the course of action will be.  The Oncology team has mentioned they may hold off his next dose of chemotherapy until his body has healed from the operation.

The new spot is to the upper-left in this photo.

Middle-right on this photo.

Bottom-center of his wrist in this picture.

     On to the positives.  Evan has been holding his food down much better and doesn't seem as traumatized by the twice a day Lovenox injections.  His weight has ticked up to 19.3 kg.  We're continuing our physical therapy sessions twice a week and Cristy and I work with him multiple times a day on other range of motions exercises.
     School seems to be going well and he's listening to the teacher when she comes to visit.  I was afraid that being at home would give him the impression that he could act out more than he would if he was in a more formal setting.  While watching him do homework he seems very comfortable with it.  We've found a book series that is entertaining and basic enough for him to read.  In the evenings he's really doing a great job with reading along with me and is starting to understand sentence structure.  He also has taken a liking to Tolkien, which if you're ever tried to read aloud is very difficult.  To say I struggle with it would be an understatement.

A little silliness with the family.

     I'll try to add another update this weekend once a surgery date is determined and what procedures will be taking place.