Wednesday, January 22, 2020

Day 1319 - Port has successfully been removed

     As a follow-up I wanted to update everyone that Evan's port removal surgery was successfully completed on January 13th.  No issues or pain to report other than a bit of general soreness on his hand where the IV was inserted.  From the pictures (see below) you'll notice that Evan didn't seem the least bit nervous and he's now adjusting to life without his port.


     It took every bit of effort for Cristy and I to keep the boys from roughhousing over the last week+.  Much to our surprise the glue used by the doctors to hold together the surgical site is still intact and everything seems to be healing as expected.  I'm so happy to have this next chapter in our journey behind us.


The port that was just below Evan's ribs on his right-hand side

     Over the weekend I took a moment to reflect on everything he's been through.  We're so fortunate that he's bouncing back and returning to the boy he was before being diagnosed.  His appetite has never been better, he's got a taste for sweets again, his agility is improving and during his last appointment his growth chart showed a spike now that he's been off of chemo for the last four months.  Having experience and empathy around this subject my heart goes out to all families still dealing with cancer.


Our first time doing an escape room

     At school both of the boys made the Principal's Honor Roll for the past 9 weeks.  As mentioned in the previous blog our intention is to get Evan and Nolan involved in some clubs or teams for additional social interactions.  We've signed them both up for lacrosse and I'm hoping to find some science based groups to enroll them in.

100 days of school


     With improved health and many challenges behind us we'll be looking for some nonprofits to get involved with.  Evan is 8 and Nolan 5, so it's hard for them to grasp the magnitude of what we suggest to them sometimes, but with their combined experiences in the area of childhood cancer they could provide families with tremendous support and insight.






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