It's been a fun Labor Day weekend, but as it draws to a close I've found myself in a reflective state. I mentioned a while back that Evan's story would soon be highlighted by CURE as part of their initiative to bring awareness to childhood cancer (September is Childhood Cancer Awareness month). Evan's story is posted and available, along with many, many other children. Their stories and types of cancer vary and it's heartbreaking to read of the struggles, but inspiring to read of their triumphs. The link can be found below and I strongly encourage anyone viewing this blog to read their stories. It's been sobering to read and reminds me that while Evan is in a stable spot for the time being, that we're not out of the woods yet.
This past week Evan began his aquatic therapy sessions. He really enjoyed the change of pace and worked very hard (as usual). Cristy and I want to check out the YMCA around us to see about getting Evan in there with some frequency to continue our work outside of our scheduled appointments. Time in the pool allows him to get stronger, without jeopardizing his joints and areas of the bone that may still be weak following his surgeries.
 |
| A little Let's Dance - Disney edition. |
For the last few days the kids have had the opportunity to have a little fun. On Saturday Cristy took the boys to Marietta Square for an art festival and then took the kids to Monster Mini-golf. Yesterday we took the kids to Stars and Strikes for video games, laser tag and bumper cars and then let the kids stay up a little later than normal for movie night. We're going to hang around the house today and try to get everyone's sleep schedules back to normal.
 |
| Getting ready for laser tag. |
 |
| First time riding in a bumper car. |
 |
| Marietta Art Festival |
 |
| Vampires at Monster Mini-golf |
For the upcoming week we have a few appointments. On Tuesday Cristy is taking Evan for a follow-up appointment with his ID doctor. This is just a check-up and we're hopeful that pulling Voriconazole from his treatment plan is still in effect. Thursday Evan has another aquatic therapy session and Friday he has his monthly oncology appointment. It will be a blood count check and IV based immune system stimulants.
Evan has enrolled in an after-school engineering club at school. He says he likes it so far, but we'll wait and see if he's going to stick with it once these sessions conclude. I know he's expressed a desire to play soccer again, but I think we've still got a bit to go physically before that can happen. Will likely provide another update after Evan's appointment on Friday.
No comments:
Post a Comment