Wednesday, April 24, 2019

Day 1046 - Putting a stake in the ground

     We're in the home stretch to the end of Evan and Nolan's school years.  No major illnesses or ailments to report.  At the moment he's progressing as expected health-wise.  Evan had his monthly chemo appointment on April 18th.  His counts looked very good (ANC of 1.68) and we're staying the course as far as dosages and such.


     While there Cristy also received some good news.  His last day of chemo is confirmed for August 30th.  Following that treatment we'll have the option of ringing the bell that day or choosing another day to celebrate.  If you're not familiar with this, it's when a cancer patient concludes treatment and gets to ring a bell to signify the end of this part of their journey.  It's a day I've dreamed of for a very long time and I hope that we get to make it a reality.  Evan will continue to keep his port for two months following treatment and will receive IVIG to help prop his counts up until the chemo is completely out of his system and his bone marrow has recovered.




     Cristy and I are still undecided on what we plan to do following treatment.  We'd like to have a party locally to celebrate, but we've also discussed possibly taking the kids on a cruise for a few days.  The challenge there is school will be back in session and the kids may need to miss a few days to make this happen.  Either way, stay tuned to the blog for the latest on that.


     Yesterday the family and I got a chance to enjoy a beautiful Easter day down at my parent's house with friends.  As usual we had a great time and everyone left stuffed as ticks.  Some pictures from the day can be found below.  Earlier in April we also got to attend the bi-annual Family Camp at Camp Sunshine.  We truly value our time with the kids and with other families.  It is so therapeutic and inspiring to see so many strong individuals.








     On March 13th Evan participated in a Fun Run to raise money for his school.  Much to our surprise he raised the most money.  Thank you to everyone who helped him surpass his goal!